Not many significant changes to report for the past week. The mucus-blood-pus combination has been on and off - more on than off I'm afraid - and it seems to me that even red meat might not agree that much with my intestine (I had a rib eye steak on Friday and Saturday I noticed some visible yellowish mucus in my stools). But today, for the second time in this week I had no visible mucus or blood in my stools, yay! Let's see how long that lasts.
The small, hard, pea-size swollen gland just below the jaw line is shrinking, but I have no idea what it is.
The extra intestinal symptoms are pretty much the same as last week, in the sense that they are still noticeable every now and then - I wouldn't say improving that much as every now and then I still have that funny tingling tired feeling in my legs. Interestingly enough, I noticed that my legs tend to feel strange after a bowel movement. No idea what that means.
On Friday I went to my GP as I was running out of Pentasa and I told him what has happened in the last month with regards to symptoms. He said that he doesn't believe I need enemas (phew!) but he prescribed me another 120 sachets of Pentasa, here they are, ready to be opened:
In fairness I only need 60 sachets till I see the consultant in early July, but it's better to have a spare box for the future, as it looks like I'll be on mesalazine for a very long time.I also asked him about this VSL#3 probiotic, and I told him what I found about it. He said that yes, there is some limited evidence that it could do something good, but you never know with these thing. Eventually he said that it might be worth trying. Unfortunately I couldn't get it on the NHS, because, my GP said, probiotics aren't medications as such. That said, I'm sure I read somewhere that a few people managed to get a prescription for it: obviously now I can't find where, sorry.
So, I ordered it from here http://www.vsl3.co.uk/, two boxes of 10 sachets each for a total of £38 (yes I know it's a lot of money but I really want to give this a go and I will probably buy another 2 boxes in a few weeks time.) They should arrive in the next few days and we'll see what happens.
That's it for this week.
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