Intro

I'm a 33 years old guy based in London, UK and on 23rd April 2015 I was diagnosed with Ulcerative Colitis. I'll never know how I got it, it’s probably too expensive to find an exact answer. I'll spare you all the details about the problems I had with the NHS and that I had to go private etc etc, will leave that for another post maybe, and I'll get straight to the point.

Why this blog? Simple. Because when I looked around for information about Ulcerative Colitis, I did find lots of useful and informative sites, but not many blog-like sites, so somewhere I could read the experience of one person, see how the illness evolves. So after a bit of a mental debate with myself, I decided that it was a good idea to put everything on the net, who knows, somebody might benefit from this information. I'll try to post an update every week.

I'm not a physician, and therefore I'm not here to offer advices to anybody: this is merely a sequence of events and a description of the symptoms and the course of my illness, that's all, it's not gospel.

Find out more information about me and my symptoms here.

Saturday 23 May 2015

The fight goes on

As the days pass by and the box of pentasa slowly gets empty, I have the feeling that whatever I do to get better doesn't work as well as I'd like it to. The consultant suggested that if the mesalazine doesn't work as well as we hope, it will change my medication, but it looks like I have to be patient for a little longer. I booked an appointment for mid July with him, and till then it's still a lot of mesalazine.

My recovery is full of setbacks. In the last few days I've been feeling slightly better, or so I thought at least. I've seen less mucus and no blood in my stool, which is great of course but that feeling of malaise keeps coming back: my legs, my arms often feel weak, tired almost as if I was just about to get the flu. My joints feel funny sometimes too, but it is difficult to describe: they're warmer than usual, almost tingling. And the darn itchiness comes and goes too. I really don't know if it is directly related to the mesalazine, but I can say that - perhaps I'm talking rubbish - it almost feels like the medication is making me more susceptible to food intolerance, if there is such a thing, I don't know. I still see no rushes, which I guess it's a good thing. The gland is still swollen by the way.

Going back to my guts, I noticed also that I don't go to the loo that often, again, I don't know if it's the medication or the fact that I'm eating less fruit and fibres in general. I suppose that if I don't go to the loo that often it's better for my colon, in the sense that it won't work too hard...am I wrong to say that?

Anyways, let's see how it goes and if there is any news I'll post back.

No comments:

Post a Comment